To ask the Scottish Executive how it ensures that patients with chronic fatigue syndrome/ME (or myalgic encephalopathy) are given an accurate diagnosis and treatments tailored to their individual needs.
Most people with myalgic encephalomyelitis/chronic fatigue syndrome (ME-CFS) will initially present to their general practitioner (GP) for diagnosis and help with management of their condition. GPs, as generalists, are trained to manage all initial contact with patients and deal with all problems. GPs are expected to update their knowledge through continuing professional development (CPD), particularly to suit the needs of their patients, including the annual appraisal process. This seeks to enable GPs to practise high quality medicine, including early recognition and optimal treatment of illnesses such as ME-CFS.
The Scottish Government strongly supports the development of robust clinical guidance to facilitate the proper management of illnesses. Work is under way to produce up to date guidance for use by GPs on the diagnosis and management of ME-CFS, as part of the development of a Scottish Good Practice Statement on ME-CFS.
We want to encourage the development of specialist services to which GPs can refer patients with ME-CFS, as part of a recognised care pathway. The Scottish Public Health Network has therefore been commissioned to undertake a Needs Assessment exercise to determine optimal services for ME-CFS. That work is at an advanced stage.
The Scottish Government is keen to ensure consistently high standards of care for ME-CFS are available throughout NHS Scotland. In January 2010, NHS Quality Improvement Scotland launched Clinical Standards for Neurological Health Services. The generic standards 1-4, in particular, will underpin improvements in services for all neurological conditions, including ME-CFS.