Skip to main content

Language: English / GĂ idhlig

Loading…

Chamber and committees

Question reference: S6W-26864

  • Asked by: Stuart McMillan, MSP for Greenock and Inverclyde, Scottish National Party
  • Date lodged: 15 April 2024
  • Current status: Answered by Jenni Minto on 25 April 2024

Question

To ask the Scottish Government what consideration it has given to adding aplastic anaemia to the list of conditions and illnesses featured on the NHS Inform website.


Answer

The Scottish Government's approach to rare conditions and diseases is not condition-specific. As there are over 7,000 rare conditions it is unfortunately not feasible for NHS Inform to host and maintain individual pages for each condition.

We are absolutely committed to ensuring that people living with a rare condition like Aplastic Anaemia will benefit from our approach. Our Action Plan for Rare Disease (published December 2022) set out our wider priorities and actions, including raising awareness of rare conditions among healthcare professionals.

The current NHS Inform page for rare conditions, developed to improve awareness of rare conditions and signpost to sources of support, is by no means final. We will continue to listen to rare disease community feedback and shape our web content around the needs of all rare condition communities.