The Official Report is a written record of public meetings of the Parliament and committees.
All Official Reports of meetings in the Debating Chamber of the Scottish Parliament.
All Official Reports of public meetings of committees.
Displaying 928 contributions
Meeting of the Parliament
Meeting date: 26 March 2024
Foysol Choudhury
It is an honour to open my members’ business debate. I thank all the members who signed the motion, and my colleagues who have chosen to speak in the debate on such an important issue. I thank Thomas from the charity Brain Tumour Research, who is attending the debate. In addition, I welcome Nadia, who has campaigned to raise awareness of brain tumours since her son Rayhan sadly passed away after being diagnosed with a brain tumour in 2017.
We should also note that today is purple day, during which members have been raising awareness of epilepsy. Two in three people who are diagnosed with a brain tumour will experience epilepsy or seizures, and the most common symptom of brain tumours in adults is epilepsy.
I was happy to see so many members partaking in “Wear a hat” day and attending the Brain Tumour Research reception that was sponsored by Beatrice Wishart. Charities such as Brain Tumour Research do amazing work—the charity is funding cutting-edge research through its centres of excellence and offering support to those who are living with brain tumours.
However, we must do more to support the work of such charities. Outcomes for those who are living with brain tumours remain far worse than outcomes for those with other cancers. According to Cancer Research UK, each year, more than 450 people in Scotland die from brain tumours, which kill more men under 70 than prostate cancer does, and more women under 35 than breast cancer does. Brain Tumour Research found that the five-year survival rate for a person diagnosed with a brain tumour is just 12.9 per cent, in comparison with over 70 per cent for breast cancer.
Despite those alarming figures, however, brain tumours are not being treated as a priority. Just 1 per cent of United Kingdom spending on cancer research has been allocated to brain tumours since records began in 2002. Patients and their families are being let down by the lack of funding. More investment in research can lead to more clinical trials, new knowledge and improved options and outcomes for patients. We must take serious action so that clinical research and treatment of brain tumours is given the attention that it deserves.
Brain tumours act differently from other types of cancer and should be treated as such. Because of the differences in the way that they develop in comparison with other cancers, they are often missed by national health service cancer programmes or by general practitioners. That means that patients are often left in the dark, or find that they have a tumour when they are admitted to the accident and emergency department.
That was the case for Nadia. She took her son Rayhan to four different GPs, after he had been suffering with consistent symptoms. It took her taking him to A and E, where he had an MRI scan, for him finally to be diagnosed with a brain tumour.
A patron of Brain Tumour Research, Theo Burrell, was also misdiagnosed for six months; she suffered extreme migraines before a scan at A and E revealed that she had a tumour in her brain. Had the tumour not been found, she would have had only three months to live. That experience is far too common among those who are suffering with brain tumours. The Brain Tumour Charity found that 41 percent of people who were suffering from a brain tumour had to visit their GP three or more times before being diagnosed.
Getting diagnosed earlier can help with the uncertainty that many patients face, as it allows them to access emotional support and to better manage their symptoms. Quick diagnosis also gives patients the opportunity to take part in clinical trials, which, according to the Institute of Cancer Research, have the lowest recruitment levels of trials for any cancer.
The Scottish Government’s “Cancer Strategy for Scotland 2023-2033”, which was published last year, rightly focuses on cancers that have poorer survival rates, such as brain tumours. For that to be successful, however, funding must be ring fenced to allow for discovery research of innovative treatments. More needs to be done to develop specialist knowledge and clinical training among medical practitioners. A new diagnostic pathway should also be developed with clinical and laboratory leaders so that no one is left waiting for a diagnosis.
Brain tumours have been left ignored for too long. They should no longer be considered too difficult to plan for. It is time to act. A new strategy must be created that recognises the differences between brain tumours and other cancers, and which delivers for patients.
17:58Meeting of the Parliament
Meeting date: 21 March 2024
Foysol Choudhury
The most recent Scottish health and wellbeing census found that, for pupils between primary 5 and secondary 3, more than a third of bullying was online. Can the cabinet secretary please advise us what measures the Scottish Government has considered to limit harm to children during the roll-out of free digital devices?
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
I asked a few questions on the issue, as well, and I agree with Fergus that we are not getting any straight answers from the Government. We should write.
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
If the majority is in favour of closing, yes. However, I still think that, since the Scottish Government has not done anything at all on this, we should write to ask whether it has any plans.
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
As highlighted in the SPICe briefing, the Scottish Government has not taken any significant recent action on additional funding for the maintenance or enhancement of conservation areas. Can we ask the Scottish Government if it has any plans to release additional funding?
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
Good morning, Deputy First Minister. Could you change the regulation, even though the current position is not to change it?
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
If the Scottish Government is not planning to amend the current legislation to allow survivors to claim redress, will it provide funding to allow the Fornethy survivors to pursue justice via legal means?
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
Welcome, Tim. It is good to see you here. I, too, have been involved with the issue before, and I think that the presentation that our colleague gave was great.
We need to recognise that swimming pools are closing. In West Lothian, three swimming pools recently closed, and I have a lot of constituents who are asking what support the Government is providing. I think that we should write to the Minister for Social Care, Mental Wellbeing and Sport to seek the Scottish Government’s response to “The Future of Swimming Facilities in Scotland” report and ask for further details on the financial support being provided for swimming facilities.
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
Right—okay.
Citizen Participation and Public Petitions Committee
Meeting date: 20 March 2024
Foysol Choudhury
I agree with both of my colleagues. I understand that the UK National Screening Committee is conducting a review and that the next review is expected to be completed in 2024. Do we know exactly when in 2024 that will be, and will we be informed of the recommendations?