Question reference: S5W-16117
- Asked by: Richard Lochhead, MSP for Moray, Scottish National Party
- Date lodged: 23 April 2018
-
Current status: Answered by Aileen Campbell on 4 May 2018
Question
To ask the Scottish Government what specific funding is available to support the work of patient and community groups set up to offer advice and support for people with Huntington’s disease.
Answer
The Scottish Huntington’s Association (SHA) received £120,000 in funding to develop a National Care Framework for Huntington’s Disease, plus a further £60,000 to deliver localised frameworks by 2019. The framework aims to help ensure families affected by the condition are given the best possible care, information and support - regardless of where they live in Scotland. Further information about the frameworks is available at: http://care.hdscotland.org/ . On
23 April 2018, the Cabinet Secretary for Health and Sport launched the first phase of the localised frameworks at an event in NHS Ayrshire and Arran.
In addition, SHA has received core funding of £146,000 split equally over two years (2016-17 and 2017-18) and will receive a further £73,000 in 2018-19. This funding contributes to SHA’s network of specialist support and initiatives to raise awareness of Huntington’s Disease.