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Chamber and committees

Question reference: S5W-00311

  • Asked by: Douglas Ross, MSP for Highlands and Islands, Scottish Conservative and Unionist Party
  • Date lodged: 1 June 2016
  • Current status: Answered by Aileen Campbell on 21 June 2016

Question

To ask the Scottish Government what support is provided by the NHS for people with dysautonomia.


Answer

Dysautonomia is an imprecise diagnosis that describes a long term condition that has a number of underlying conditions. It includes postural orthostatic tachycardia syndrome (postural tachycardia syndrome; Ehlers Dahnlos syndrome; variants of chronic pain; as well as myalgic encephalomyelitis/chronic fatigue syndrome and other syndromes which are characterised by severe unpredictable fatigue; postural hypotension (fainting); and a general disruption to activities of daily living. There is no specific treatment but a clear diagnosis allows patients and their families to take back control and begin to self-manage their condition. Depending on the patients symptoms, there are a wide range of NHS services available to provide the necessary support. Any specialist input would be to offer a detailed assessment and diagnosis and advice on a self-care treatment plan which would be administered as locally as possible.