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Chamber and committees

Dying to Care

  • Submitted by: Alison Johnstone, Lothian, Scottish Green Party.
  • Date lodged: Monday, 05 December 2016
  • Motion reference: S5M-02924

That the Parliament welcomes the publication of the Marie Curie report, Dying to Care, which was produced in partnership with Hospice UK, MND Scotland and the Association of Palliative Care Social Workers; notes that it examines social care at the end of life and calls for a new approach to make sure that people with a terminal illness and their carers get the social care support that they need to allow them to make the most of the time that they have left; understands that the report highlights that, as time can be short and unpredictable for people in these circumstances, access to appropriate social care makes it more likely that they will get the care that they most prefer; acknowledges that it makes a number of recommendations that it believes could improve services including, ensuring rapid access to adaptable social care packages, making the social security system responsive to the needs of people with a terminal illness and improving palliative care and bereavement training for professionals; understands that there is not enough data held on the number of people who are in the last year of their life; believes that improving collection and analysis of such information is needed in order to know the extent of the need for the palliative social care that it considers fundamental to helping improve services in Lothian and across Scotland; considers that further work is needed to examine and coordinate end-of-life care in the community to prioritise social care; notes the Strategic Framework for Action on Palliative and End of Life Care, which was published by the Scottish Government in December 2015 and the ongoing efforts to ensure that everyone who needs palliative care has access to it by 2021, and, as part of this work, asks the Scottish Government to consider the recommendations of this latest report.


Supported by: Clare Adamson, Jackie Baillie, Miles Briggs, Alexander Burnett, Donald Cameron, Jackson Carlaw, Alex Cole-Hamilton, Bob Doris, Neil Findlay, John Finnie, Kenneth Gibson, Ross Greer, Clare Haughey, John Mason, Liam McArthur, Pauline McNeill, Gil Paterson, Alex Rowley, Mark Ruskell, Anas Sarwar, Colin Smyth, Maree Todd