Question reference: S6W-26192
- Asked by: Ben Macpherson, MSP for Edinburgh Northern and Leith, Scottish National Party
- Date lodged: 15 March 2024
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Current status: Answered by Jenni Minto on 15 April 2024
Question
To ask the Scottish Government, further to the answer to the third supplementary to question S6O-02854 by Jenni Minto on 7 December 2023, what its response is to the reported concerns of myalgic encephalomyelitis (ME) organisations and people with ME regarding the way that the Scottish Good Practice Statement (SGPS) on ME-CFS was updated, including concerns that the key recommendations from the National Institute for Health and Care Excellence (NICE) guideline were not inserted into the updated SGPS.
Answer
We published a partial update of the Scottish Good Practice Statement on ME/CFS on the Scottish Government website in February 2023. This incorporated key recommendations from the NICE 2021 guidance on a broad range of topics such as energy management and Graded Exercise Therapy; Cognitive Behavioural Therapy; diagnosis and care of children and young people; and severity scale of illness.
The statement also includes updated information on social security and social care in Scotland and an appendix of useful resources and contacts provided by Action for ME and other partners.