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A National Care Framework for Huntington’s Disease

That the Parliament understands that Huntington’s Disease (HD) is a rare, hereditary, degenerative, incurable and ultimately fatal condition that attacks the brain and central nervous system and that the disease affects an estimated 1,100 people in Scotland, with a further 4,000-6,000 at risk of inheriting it; welcomes the Scottish Government’s decision to commission the Scottish Huntington’s Association (SHA) to lead on the development of a national care framework for HD to help drive up standards of care and support; further welcomes SHA’s announcement of a multidisciplinary expert group to lead on the development of the framework; wishes the SHA, the development group and the wider HD community every success in their work, and calls on health and social care providers throughout Scotland to get behind the growing movement to raise both awareness of HD and the standards of care and support provided to generations of families who have had its devastating impact visited on them.

Supported by: Ross Thomson, Alexander Burnett, Alison Harris, John Mason, Murdo Fraser, John Lamont, Alison Johnstone, John Finnie, James Dornan, Oliver Mundell, Liam McArthur, Iain Gray, Peter Chapman, Douglas Ross, Kenneth Gibson, Miles Briggs, Jeremy Balfour, Liz Smith, Liam Kerr, Anas Sarwar, Jackson Carlaw, Gordon Lindhurst, Rachael Hamilton, Jackie Baillie, Maurice Golden, Monica Lennon, Richard Leonard, Brian Whittle, Margaret Mitchell, Clare Adamson, Emma Harper, Neil Findlay, Richard Lyle, Clare Haughey, Alex Cole-Hamilton, Ivan McKee, Fulton MacGregor, Edward Mountain, Daniel Johnson, Colin Beattie, Graeme Dey, Joan McAlpine, Claire Baker, Bruce Crawford, Stuart McMillan, Rhoda Grant, David Stewart, Lewis Macdonald, Ruth Davidson, Elaine Smith, Richard Lochhead, Alex Rowley, Michael Russell, Bob Doris, Andy Wightman, Bill Kidd, Willie Rennie, Gil Paterson, Mark Ruskell, Kezia Dugdale, James Kelly, John Scott, Patrick Harvie, Annie Wells, Finlay Carson, Colin Smyth

Current Status: Fallen on 05/10/2016
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