Question reference: S6W-08614
- Asked by: Fulton MacGregor, MSP for Coatbridge and Chryston, Scottish National Party
- Date lodged: 19 May 2022
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Current status: Answered by Humza Yousaf on 26 May 2022
Question
To ask the Scottish Government, further to the answer to question S6W-07156 by Humza Yousaf on 28 March 2022, whether it will provide a further update on advice provided to NHS boards to enable the routine prescribing of sapropterin for people with phenylketonuria (PKU).
Answer
Healthcare Improvement Scotland is working to provide updated advice to NHS Boards to enable routine prescribing of sapropterin. We now expect this to be in place in June. In the meantime, doctors can request access to medicines that are not generally available on the NHS on an individual case-by-case basis through local health board medicine governance processes.