Current status: Answered by Jenni Minto on 23 March 2026
To ask the Scottish Government what ongoing work is being undertaken regarding data collection on paediatric long COVID.
The National Institute for Health and Care Excellence (NICE) describes long COVID as “a multi-system condition with a range of debilitating symptoms… people may have wide-ranging and fluctuating symptoms following an acute COVID-19 infection, which may vary in nature over time”. The ongoing impact of long COVID can be debilitating for some with impacts on daily activities and quality of life reported to include fatigue, breathlessness, anxiety, depression and cognitive impairment.
National population health surveys are currently the most appropriate source of data on the proportion of a population experiencing the long-term effects of COVID-19. The annual Scottish Health Survey (SHeS) is the most robust source of data on self-reported long COVID prevalence in Scotland, including among children. Long COVID is defined for this survey as symptoms that develop during or after a COVID-19 infection that continue more than four weeks after the infection and are not explained by something else. The most recent data for 2024 was published in October 2025. The data for children (aged under 16) are available via the survey dashboard. The question asked respondents who had had COVID-19 whether they currently had long COVID. 1% of children aged under 16 were reported to have long COVID. This is the lowest self-reported prevalence rate among all age groups shown in this survey. The overall adult self-reported prevalence rate was 7%.
The Scottish Government does not have access to data about long COVID held in NHS electronic systems. It is in any case difficult to identify people who have long COVID from within NHS records: not everyone with long COVID will attend their GP, and not all cases or symptoms will be recorded as long COVID. Research undertaken in Scotland, England and Wales has consequently shown that long COVID among adults is under-recorded in GP electronic systems compared with findings from surveys such as SHeS which ask about self-reported prevalence. It is reasonable to assume that long COVID among children is also likely to be under-recorded and is therefore difficult to assess accurately from health records.