Question reference: S5W-17896
- Asked by: Alexander Burnett, MSP for Aberdeenshire West, Scottish Conservative and Unionist Party
- Date lodged: 27 July 2018
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Current status: Answered by Jeane Freeman on 9 August 2018
Question
To ask the Scottish Government, further to the answer to question S5W-17582 by Jeane Freeman on 23 July 2018, which specialist treatment centres there are in Scotland that cover all necessary services for patients with Xeroderma pigmentosum (XP), including dermatology, ophthalmology, audiology, neurology and clinical psychology.
Answer
Xeroderma pigmentosum (XP) is an extremely rare disease affecting around 100 people across the UK. The treatment and supervision for this condition is highly specialised and is best delivered through specialist hospital services which can provide expert advice to fit the particular needs of the patient concerned.
Scottish Government contract with NHS England to ensure access for Scottish patients to highly specialised service at Guy’s and St Thomas’ NHS Foundation Trust.