Cystic Fibrosis and Medicines Access
- Submitted by: Neil Findlay, Lothian, Scottish Labour.
- Date lodged: Wednesday, 22 November 2017
- Motion reference: S5M-09067
- Current status: Achieved cross-party support
That the Parliament understands that there are new medicines available to treat the underlying cause of cystic fibrosis, but is concerned that access to these is being delayed until negotiations on a portfolio of new cystic fibrosis drugs is assessed and the New Medicines Review recommendations are implemented, and notes the calls both for all eligible people in Lothian and across the country to have immediate access to these medicines to prevent further decline and for established bodies such as Cystic Fibrosis Trust UK and Cystic Fibrosis Registry to be asked to capture data and assess the real value of these new medicines.
Supported by:
Jackie Baillie, Claudia Beamish, Neil Bibby, Miles Briggs, Donald Cameron, Jackson Carlaw, Alex Cole-Hamilton, Kezia Dugdale, Iain Gray, Johann Lamont, Monica Lennon, Gordon Lindhurst, Pauline McNeill, Oliver Mundell, Alex Rowley, Anas Sarwar, Elaine Smith, Brian Whittle