Information available about Primary Hyperparathyroidism
Primary Hyperparathyroidism is understood to be the third most common endocrine condition in Scotland. However, there is a paucity of official information available to people who are experiencing symptoms of PHPT.
The best sources of information can be found on some international websites and on: //www.hyperparathyroiduk.com/.
Anecdotal experience suggests a significant lack of awareness amongst GPs and other medical practitioners about the condition, including the symptoms and the correct diagnosis. It is a progressive health condition which, if left untreated, can lead to a range of serious health problems (including a cost to the NHS of treating these problems) and a substantial reduction in quality of life.
Treatment of PHPT caused by adenoma
PHPT caused by adenoma (a benign tumour) can be completely cured by an operation called a parathyroidectomy. This operation is most successful when performed by experienced surgeons who undertake a high volume of this type of surgery. Elsewhere in the UK, minimally invasive parathyroidectomy is available on the NHS, but it is not clear from enquiries submitted to the Scottish Government whether minimally invasive surgery is available in Scotland at present and, if so, where.
I have made an FOI request to the Scottish Government for information about whether minimally invasive surgery is available in Scotland. Responses have been inconsistent on this point.
Funding for PHPT
In terms of providing funding for research into PHPT, I would ask that the Scottish Government explore in particular why it has a higher incidence in females than males, and in older people generally.
NICE guidance
Through my petition, I seek to ensure that GPs and medical practitioners will adhere to international best practice guidance on diagnosis and effective treatment of PHPT, pending finalisation of NICE guidance on diagnosis and treatment of PHPT (currently being produced), with a view to considering and adopting the NICE guidance once it is available.
The work of the NICE panel can be accessed at: https://www.nice.org.uk/guidance/indevelopment/gid-ng10051/documents.